My Beautiful Baby Girl,
My mind is racing at a thousand thoughts per minute. We are now in May and the safety of knowing that we have until your next appointment to enjoy "normal" life is almost over. We are off to London next week.
We've had countless days out and you've settled in at school, we shared a family Holiday to Center Parcs and we've just enjoyed being a family of 5 and I've loved every minute...even the tantrums and the cheek!
It was three years ago today that we went for our second opinion to Great Ormond Street and met with Dr Ian Sullivan for the first time. It's amazing because we've shared almost three years with you that at one point - we didn't think we'd be lucky enough to have.