Wednesday, 15 March 2017

Siblings || March 2017

As this post goes live I will be sat on the 07:22 train to London Euston. Only I won't be taking Martha to London, today I'm going for my own check-up.

I used to get nervous for my own ECHO's, I hated the thought of taking my top off and only having tissue paper to cover me...but I've signed my daughter up to a lifetime of this, so today I'll have to put my big girl knickers on and get on with it.

It's going to be another tough month for my amazing trio. Martha is having her pacemaker generator replaced next week which means another hospital admission that we need to get through. I'm hoping that if she can do Open Heart Surgery and be discharged after three days - that she'll do this one in-and-out within two days. But to be honest, as long as she makes it through I don't care how long it takes.

Wednesday, 8 March 2017

A letter to Martha Grace || March 2017

To the bravest little Lady in the whole world,

On the day of my 30th Birthday, it was your half birthday and you turned three and a half years old. I have to keep pinching myself that you are almost four years old. Four years ago we didn't even know that you would be born ready to face as many battles as you've had to - and look at you now.

This month is going to be another tough one for us, especially you. Your pacemaker generator will be getting changed before the end of the month. It means another operation for you. It means another trip to London and it means that once again we have to put you through a procedure that we would do anything to go in your place.

Wednesday, 15 February 2017

Siblings || February 2017

I woke up this morning to a reminder on my phone saying it was "Siblings" day. I had totally forgotten. I was really organised on a recent afternoon walk and had my photo ready, I'd just totally forgotten to do anything with them.

Back in January we thought we had three clear months before going back to London. But last week while I was doing my monthly tour of the bank's with Martha, Mark phoned me with the news that the booking office at Great Ormond Street Hospital had just called with a date for Martha's Pacemaker generator replacement. 

A lot sooner than we thought.