Thursday, 9 October 2014

A family update

A couple of weeks have passed since I published my last blog post; at that point both girls had a cold and I hadn't taken them to the Doctors yet.

But the following morning I realised that I should play it safe especially with Martha Grace - a simple cold for most kids could brew in to a full on respiratory infection for Heart Babies/

Wednesday, 24 September 2014

Girls got a cold

The lurgi has arrived in our house; Isabella started sneezing over the weekend and by Monday morning she had a full on mucus cough (sorry for the TMI), I knew it was only a matter of time before Martha caught it - and I was right. She was absolutely fine when I put her down for her nap on Monday afternoon but as soon as she woke up I knew she'd caught the cold as she had a runny nose. Since then she's had the same cough as Isabella.

I haven't taken her to the Doctors (cue the gasps of horror) as Martha is absolutely fine in herself, she isn't cranky or off her bottles or food. She's been crawling and rolling around the living room, sticking to her normal nap times and bed times. Our Surgery operates a walk-in system so I know if I suddenly think she needs to be seen then I only have a two minute drive and I'm there, but for now I'd rather have her home than risk her getting anything worse from sitting in the waiting room. 

Monday, 15 September 2014

London 11.09.2014

I have been wanting to put this post together all weekend, a few of you have messaged to find out everything was OK as I hadn't really updated you all properly (thank you to those who did). But I'd worked a late shift the night before we went to London, we had a nightmare journey home and Mark went away for the weekend - I just haven't gotten around to it until now.

I don't think I will ever stop being nervous before an appointment at Great Ormond Street, regardless of how well Martha looks to us - we never really know what's going on inside

Wednesday, 10 September 2014

That dreaded feeling again

The appointments come around so quickly. It doesn't seem like so long ago when I was dreading her last check-up. Once again the world stops tomorrow - as hard as I've tried I can't see past tomorrow; I can't imagine how my life will look tomorrow night. 

We have been exceptionally lucky; when in the past three weeks two Heart Babies whose stories we've followed have sadly passed away - we still have our Martha Grace...she has just celebrated her 1st Birthday.

We had amazing results at our last appointment and to ask God  for an improvement on that is just plain greedy. So I'm going to pray that there are no changes; that she is neither better nor worse than she was last time, that Great Ormond Street continue to be happy with her progress. Failing that; I would just like that whatever issue we encounter tomorrow - they have a plan for how to make her better.

But Mark has been warned, if we get what we consider to be "good news" tomorrow - then Christmas begins in our house tomorrow night; after the Christmas we had last year we more than deserve it.

She's finally sitting up by herself - unaided, she has been putting weight on nicely and was 16lbs 5oz last week (7.4Kg) and is really enjoying her food. Deep down a little part of me is convinced that she is fine, I know that we would have noticed a change if there was anything major going on...but I know better than to be that complacent.

Please keep her in your thoughts tomorrow.


Wednesday, 3 September 2014

Martha Grace's 1st Birthday trip to Chester Zoo

I don't know why it's taken me until now to get this post published, I don't know what I've been doing. I've only just looked through my camera at all the pictures I took and uploaded them to my tablet.

Thank you to everyone who took the time to wish Martha Grace a Happy Birthday - she is so lucky to have you all supporting her.

I feel like I've droned on enough about what a huge milestone the Birthday was for Martha and how it was a day we didn't believe she'd make it to. So here are just a few photo's of her Birthday.

Have a great day everyone.


Wednesday, 27 August 2014

This day last year; Open Heart Surgery #1

Martha Grace will always celebrate two Birthday's; her actual Birthday for the day she was born and her "Heart Birthday".

Today is Martha Grace's 1st Heart Birthday, it's the first anniversary for her Open Heart Surgery on Tuesday 27th August 2013.

You can read my original post about the day of the surgery here, there is very little point in me typing out again how frightened we were all morning and how we spent the 6 hours she was in theatre feeling like we were having some kind of outer body experience. But I ended that post by saying I remembered very little of what happened that night after we got the call telling us we could visit her in ICU.

But I remember it like it was only yesterday.

We had been warned that Martha would probably return to the ward with her chest open while the swelling goes down to reduce the pressure on her heart.We'd also been warned that she herself would puff up with

Friday, 22 August 2014

Martha Grace first few hours

She was delivered at 7:53pm. She came out screaming and was a beautiful colour. But 10 minutes later and she'd been taken away to NICU.

I had to shower, get dressed, be sick (I always vomit after giving birth) and organise my things to go back to the ward. I'd requested that I had a bed in the antenatal unit as the thought of being the only woman in a