My beautiful Girl, where do I start?
It's taken me days to pluck up the courage to write your monthly letter, I've set myself a very strict time limit in the hope that today I can just power through and not have any time to cry.
What we hoped would happen last Thursday is that your Heart was still coping well with recovering from Surgery and that we just need to come back in three months. You had done so well to come home from hospital just 5 days after such a major operation, we knew it was all too good to be true. We thought the wound infections were our punishment - how wrong were we!?
Martha it kills me to say that the muscle tissue that they removed back in October because it was obstructing your LVOT has grown back. We always knew it would, it's a common trait of patients with an Interrupted Aortic Arch - but no one thought it would grow back this quickly. Your Aortic Arch is also narrowing at the end of the patch they made wider in October.
Worryingly, Dr Sullivan himself said that you are far more complicated than they thought when you were first born. Of course you are though - when have you ever done anything by the book?
I was so cross on Thursday, you never seem to catch a break. Daddy was just heartbroken for you - I haven't seen him cry since the morning of your 1st ever operation, he's taken the news really hard this time.